Help has arrived as New Jersey now has Rare Disease Advisory Council
For those with a rare disease or know someone battling through a rare disease, what just happened at the Statehouse in Trenton is the equivalent of winning a playoff game.
Allie Crocker
Here’s your chance to golf & help those battling a rare disease at the Jersey Shore
The effort is spearheaded by Allie and Jonna Crocker and their 'Fighting H.A.R.D. (Having A Rare Disease) Foundation which raises money and support for those battling a rare disease.
Howell sisters Fighting H.A.R.D. non-profit holding fundraiser to help kids with rare diseases
The Fighting H.A.R.D. (Having A Rare Disease) Foundation is holding a Golf Fundraiser on August 10 at Pebble Creek Golf Club in Colts Neck and you are invited.
Howell teens battling rare diseases need your help raising money for kids battling rare diseases
You may have seen or heard their story by now, but it's worth revisiting over and over again because their mission is that important and they are that inspiring.
Those battling Rare Disease, like Howell, NJ teens, could soon get more aid from the State
Having a rare disease can come with expensive medical bills or families diverting money to pay those bills and trying to figure out how to pay for other necessities.